Managing E.B.

Wound Care is complex. Successful treatment of difficult wounds and/or burns requires assessment by a medical professional.

Epidermolysis Bullosa (EB) is a rare genetic disorder that causes the patients skin to blister and fall off, even with the slightest touch. EB is also known as the‘Butterfly Disease’ because an EB sufferers skin is as fragile as a butterfly’s wings. This recurring, blistering condition can result in deep ulcerated wounds which may take months to heal and can cause severe pain. There is no cure for EB, although researchers are investigating stem-cell and gene therapies as potential future treatments.

EB in Children:

Children with EB have difficulty with daily activities, such as walking and feeding, as well as growth, development, dentition, nutrition and breathing. Their skin care is very comprehensive and involves dressing changes and special clothing that won't irritate their skin.
Children and their parents require a great deal of support, both financial and emotional, as the disease progresses. To date, there is no cure for this condition, but much can be done to improve the quality of life for children with EB and their families.

EB Care and Wound Prevention:

In everyday life, complete avoidance of friction or trauma is impossible, so most patients experience different degrees of blistering and development of chronic wounds. As with other skin diseases, this condition can have a profound impact on the daily activities of affected patients. The limitations patients may have due to pain, itch, odour and time-consuming dressing changes are problems that affect their quality of life.
The best EB treatment involves a careful combination of the following aims:

Managing EB involves a holistic approach including:

Click here to see the products designed for Wound Care and EB 

To learn more about the management of and latest research on EB, we encourage you to visit:

DEBRA of America
DEBRA Canada
DEBRA International